Pain Diary

I  found this on the The Mighty. How to Make a Pain Diary is a fantastic post and a brilliant idea. I'm going to try and start one but I'm usually rubbish at keeping up with these things!



Source: NAIDW

My Story So Far…

For those who don't want to scroll back through all of the posts. This is a long post so grab a cuppa, a chocolate bar and make yourself comfortable. When I was in my teens I discovered heavy metal music and fell in love! All it took was the first chord of Paranoid by Black … Continue reading My Story So Far…

Crossing Oceans

You certainly find out who your friends are when you begin suffering from a chronic illness or chronic pain.

Me Without Healthcare….

American politics. Powerful.


Again, a rare occurance to get political on my blog. Because whether people agree with me or not, this is a matter of life & death. The AHCA/BCRA must not pass!

I do not joke about death. Yet, after asking nicely with no movement & amendments sure to get worse, I know no other way to get through.

The 13 authors don’t want to be called heartless or murderers then don’t pass this cruel bill.

Some may say it’s extreme, but I’m tired of playing nice & being ignored, & getting canned responses about how I must take more personal responsibility when I’ve taken plenty.

I’ll be sending this mock obituary through to my delegation tonight because I think they need to see the consequences of a “Yes” Vote:

Nicole “Nikki” S. died of chronic rejection in a Philadelphia hospital.

Nikki was born on May 25, 1977 in Watertown, SD…

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Rattling as I Hobble

Due to the recent pain levels I had a telephone consultation with my GP. They told me if I need to change my painkillers I don't need to go in as they know how painful it is for me. My GP rang quite quickly after I phoned to request the consultation. I explained that the … Continue reading Rattling as I Hobble

Full Nights Sleep… What is That?!

It's 5:29am, I've been awake since 4am! I was rudely awakened by pain in my back and both hips. Moving to get out of bed was agony. "I'm so fucking sick of this!" I thought as I hobbled to the bathroom. I needed to get moving to help ease the pain a little so I … Continue reading Full Nights Sleep… What is That?!

A Page Dedicated to my Furbabies!

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Pre-Op Letter!

Today I got my letter for my Pre-Op appointment! Was surprised it was so quick. The appointment is on 4th July at 19:00. I have no idea what tests they'll need to do...

Under-treated Chronic Pain Can Kill — Tears of Truth….

Untreated or under treated Chronic pain can kill! There are many articles that discuss this topic but I’m writing from the chronic pain patients perspective. Most things that are written are authored by Dr’s and others in the medical profession. But for me and for us this is real! Sudden cardiac death is a frightening […] … Continue reading Under-treated Chronic Pain Can Kill — Tears of Truth….